Committee on Public Health Ordinary meeting
2 setembro 2026
Sumário atualizado a 2/09/2026
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SANT European Parliament
Seguir as suas sessões00:05 - 01:45
Orador 2
Dear colleagues, ladies and gentlemen, Madame President Metsola, welcome back to today's afternoon meeting. The next item on our agenda is an exchange of views in the series Excellence in Health Science on childhood cancer. This timing is particularly meaningful as September is the childhood cancer awareness month, also known as Gold September. Today, brave Leonor Luast, 11-year-old survivor of childhood cancer, will share with us her child-lived experience, what cancer did and does to her life in her own words. I am very much delighted that President Roberta Metsola honored us with her presence by supporting the SANT Committee's extremely important work in this field.
Thank you, Roberta, for being here with us today and for opening this exchange of views in a few seconds. Today, I also welcome Sam Deems, economist and parent, Professor Gilles Vassal from European Society for Paediatric Oncology, and Delphine Heenen from the Childhood Cancer International Europe. I will give the floor to President Metsola for her opening remarks and then to Leonor Luast and Sam Deems for their introductory statement and afterwards to the members for the Q&A session. Madame President Roberta Metsola, the floor is yours, please.
01:45 - 07:03
Orador 1
Thank you very much, dear Adam. Good afternoon to you all, dear colleagues, dear friends, a very warm welcome to the European Parliament for those of you who joined us from outside and are also online, especially to the young people over here in this room. It's great to have you all here. This is your house where your elected representatives work together to improve people's lives and shape our shared Union. It is our job collectively, as Adam also said, to build real change that matters to you in your daily lives, and nothing can be more important than the fight against the menace of cancer.
Diagnosis at any age upends our world, but for a young person with their whole life ahead of them, it is especially cruel. At the very moment when a child's days should be full of fun and excitement, thousands of Europe's young people are instead having to struggle with the heavy and unforgiving burden of cancer, processing difficult new emotions on top of the troubles of everyday life, learning a frightening new language of chemotherapy and surgery while still finding the words to express yourself, juggling endless medical appointments with school and hobbies, as well as finding space for those all-important moments with family and friends. Dear Leonor, first of all, big pleasure and an honor for me to meet you. You know more about these challenges than many of us here. I'm so glad that you are here with us, first of all, but even more glad that you are willing to share your story of courage and survival together with your parents.
You did not ask for any of this, and yet by being here today, you are taking the fight to cancer and helping to change young people's lives across our continent.
Of course, for every child diagnosed, there are many more lives forever changed. Dear Sam, dear Delphine, we know each other from many years back. We are mothers of boys who were in school together. You have suffered losses no parent should have to experience. It is inspirational how you have turned your pain into action.
And as I committed all those years ago when we first spoke about this Delphine, this house is ready to work with you so that other families in your situation have the support that they so desperately need and still so desperately lack in so many member states of our union. That is what today's event is all about. And we have many things we do in this house, but nothing shines a light on reality that hits all of us as strongly as events like this. Bringing campaigners together, experts together and members, elected members of this parliament together to raise awareness, to spark ideas and ultimately push for real tangible progress in people's lives. Dear Adam, we have known each other also for many years.
Thank you for your consistent and your committed efforts to keep cancer high on our political agenda. Having members also with a medical background to do politics in order to improve people's lives is really how we can tangibly from all member states run the agenda from here, not just during childhood cancer awareness month, but every day. And I would like to thank all the colleagues here, many doctors, members of the European Parliament and surgeons in the audience for all the work that you do in this committee and every day. Now together we are strengthening cooperation for pediatric oncology research and clinical trials. We're building better access to innovative age-appropriate medicines and diagnostics, but still huge disparities between one member state and another.
We are reinforcing pediatric cancer networks and cross-border referrals and we are advocating for better long-term psychosocial, educational and social support for survivors and families. This is all progress, but there is still so much we have to do. There is still so far to go from fixing medicine shortages to making access to care more equal across Europe. And in all of these challenges and more, our parliament is your ally. Here we work along political lines across all political groups to come together in order for us to make your life a little bit better and a little bit more not at least less insurmountable.
Because when we say that Europe is there for you, it is more than a promise. It is a mission statement. So I would like to wish you luck not only for today, but for all the work that we can do together in all our productive and rewarding discussions. Thank you.