Senate Community Affairs References Committee - Adelaide, SA [Part 1] (part 2 of 2)

24 August 2026

Senate Community Affairs References Committee Australian Parliament

00:00 - 00:16
Speaker 3
There needs to be some education across the sector from from nurses, maternal healthcare nurses through to GPs and and even emergency ERs so that that they can see the clinical presentations even if the seizure hasn't occurred yet. 
00:16 - 00:20
Speaker 1
Right, okay.  Yeah, right.  Go ahead. 
00:20 - 01:15
Speaker 10
Thank you.  I think what we hear from families, you know, across the country is just how varied it can be in getting this genomic testing.  And what Associate Professor How gave evidence on is that a Medicare item will help support those children more in an outpatient setting where they're interacting with a pediatrician.  So I mean from my own example, at, you know, a large tertiary hospital in a capital city, we received genomic testing very fast and it was life-changing at a very critical point.  That should be for all families no matter what door they're entering the health system in, whether it's a state, you know, based funded hospital or through a GP and a pediatrician. 

And I think the Medicare an improved Medicare item to roll out something like GeneSteps, which you've heard about, would be what we'd be advocating for. 

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