Health Bill

9 July 2026

Health Bill House of Commons

00:35 - 00:45
Speaker 1
Okay, we now come to group 53 and new clause 6.  I call Helen Morgan to move the new clauses.  Helen Morgan. 
00:45 - 01:47
Speaker 5
Thank you very much, Dr. Huck.  It's a pleasure to serve with you in the chair.  New clause 53, sorry, new clause 6 requires the creation of a health data charter which includes measures to protect data so as to ensure privacy and reasonable usage.  Patients should be in control of their data.  As we've discussed in previous sessions, we don't think the bill goes far enough to provide reassurances in this regard. 

Everyone agrees with the need for the single patient record, but there's a genuine risk that I don't think anyone in this room wants to see, that it could be derailed over very understandable and reasonable data privacy concerns.  Sufficient guardrails and transparency are key to this, especially around secondary uses of health data, and trust is essential, as we've discussed on many occasions, for this system to succeed.  That's why we've tabled a health data charter amendment.  It would set out guiding principles for data sharing across the NHS, including the single patient record.  It would be led by data experts, but also importantly clinicians and patient representatives. 

Ensuring the voices of doctors and patients are heard is central to building trust and therefore widespread uses of any data sharing systems or technologies.  Thank you. 

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